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As Cord Blood Bank of Canada faces a $600,000 lawsuit, patients across the country are concerned about the status of their children’s stem cells they are storing at the facility.
According to Health Canada, stem cells in cord blood can be used in the treatment of certain health conditions, including leukemia.
In 2015, Cord Blood Bank reportedly failed an inspection by Health Canada, but the blood bank was allowed to operate only if it stored samples for the potential use by the person to which they belonged and not their family members.
Since there is a low probability that a person’s own stem cells can be used for their own treatment, the change made it unlikely that the stem cell samples could be used at all.
Many Cord Blood Bank customers say they chose to store their children’s stem cells at the blood bank because of the potential that they could be used for family members. After Health Canada’s order, some clients attempted to transfer their children’s stem cell samples to a different facility.
However, they have reportedly been unable to get through to Cord Blood Bank. The company’s outgoing voicemail message reportedly states that Cord Blood Banks is not returning calls due to a medical emergency.
According to a CBC News report, Heather Girling and Lucio Valvasori are concerned about the lack of information.
The Toronto couple has reportedly spent more than $8,000 to store stem cells for three of their children.
“We put all this money and effort toward our children’s future,” Valvasori said. “We could have invested it, we could have used it for other things and we decided, no, let’s do this for them.”
After Cord Blood Bank failed to charge annual storage fees last year, they are wondering if the stem cells they stored are still viable.
“I’ve left numerous messages. No one’s called me back,” Girling said. “I’ve actually left messages saying that we needed the blood.”
In late 2017, Natasha Bitsakakis-Pack of Waterloo, Ontario, tried to move her daughters’ stem cell samples to another facility after her younger daughter was diagnosed with a rare genetic syndrome. Cord Blood Bank allegedly refused to release the samples unless she paid $33,500.
Bitsakakis-Pack and her husband subsequently filed an application in Ontario Superior Court seeking an order forcing Cord Blood Bank to release the samples. Their case settled out of court and, in February 2019, their children’s samples were transferred to another cord blood banking facility.
When the samples were tested at the new facility, the results showed that they contained a low percentage of viable stem cells and were therefore “unusable for any medical purpose,” Bitsakakis-Pack indicated in a statement of claim she filed in December.
In February 2018, Health Canada published information online about cord blood banking, in which it noted that the probability of using one’s own cord blood for treatment is low, because cells from a healthy donor are preferred. According to Health Canada, the chances of a person using their own cord blood for treatment is estimated to be between 1 in 20,000 and 1 in 250,000.
Cord Blood Bank argued in its statement of defence in Bitsakakis-Pack’s lawsuit that it had only stored samples intended for an individual’s use, not for family use. However, CBC News reports that more than two dozen clients of Cord Blood Bank told them that was not their understanding when they signed up. Some have reported that they paid an additional fee to store an extra sample to use for a family member.
Girling and Valvasori reportedly stored their second son’s cord blood with Cord Blood Bank in October 2013. The child died in July 2014, but Cord Blood Bank after reportedly told them that they could continue to store his samples for potential use for their other child, they continued to pay to store them.
Girling was reportedly charged the annual storage fee for the deceased child’s samples for two years after Cord Blood Bank was no longer allowed by Health Canada to store the samples.
“When you lose a child it’s a life sentence of sadness, and it kind of puts things in a perspective of what’s important,” Girling said. “People make mistakes, but come clean.”
The $600,000 lawsuit against Cord Blood Bank and its owner Bernadette Ellison accuses them of failing to store the cord blood samples properly to ensure they would remain viable for medical use.
Federal court documents show that Cord Blood Bank is on the hook for more than $724,000 in unpaid taxes since September 2018.
What do you think about the Cord Blood Bank lawsuit? Tell us your thoughts in the comment section below!
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27 thoughts onCord Blood Bank of Canada Leaves Parents in Limbo Amid $600K Lawsuit
I had 2 of my 4 children’s blood sent to CBBC in 2006 & 2012. Never had I received any
information indicating that we no longer had access to our cord blood.
I would like to be added to the suit as well. My three children’s cord blood was banked there as well (04/06, 08/08/, 10/11) and I can’t believe I only found out about any issue was while I was teaching my Child Development class about Cord Blood Banking. I’m so upset. No one has responded to my query to CBBC asking “How do I go about accessing the banked samples?”. I guess I have my answer.
Stored my daughters cord blood back in 2006 and have had issues from day 1 with this company. I’d like to be added to the class action lawsuit.
I believe this is not a class action lawsuit and only just a lawsuit brought on by the Bitsakakis-Pack family. And good on them.
I would like to start a class action lawsuit. I will contact a lawyer I know and go from there. If it doesn’t work out with him I will try another way.
I would like to join this class action law suit. I have no response from anyone I contact as well.
I have not been able to reach anyone regarding the class action.
What is your email?
Please join the CBBC Client Forum Facebook group.
Can anyone forward me informtaion regarding the class lawsuit against Cord blood Canada please? I had my son’s blood stored in 2014 and would like any information.
Good Afternoon,
I also could not get a hold of the cord blood bank to make payment my annual payment and this trying to find contact info is how I came across this article. If this is a class action I would like to be part of it. and understand how can recover the stem cells and find out what happened with them. Thank you.
I feel so sick about this. We could not afford this back in 2009 when stored this for our first child but we did it, knowing my children may have type 1 diabetes one day as my husband and mother inlaw had type 1. Both my children now have type 1 and I just can’t understand how a company holding so much hope for people can do this.
Hi Jessica,did you find out any info about the class action lawsuit.This is happened to my family too and I would like to join.
Thank-you:
What is your email?
Hello, I have just learned about this and I’m absolutely sickened! I have been paying to store my daughter’s cord blood since 2007! I would like any information available on the class action lawsuit. Thank you very much.
I would like to be added too please, same story. Stored cord blood there too
Please join the CBBC Client Forum Facebook group.
Hello, I am one who tried to contact them many times in 2018, so they could provide service for my third child. The calls never went through, neither the emails, so I sent a Registered letter and I am sure they received but never replied. Because of the lack of response I started to get worried about the stem storage of my first two children. I was without any resource and not sure how to deal with it until I came across the news from CBC in regards the lawsuit. If this is a class action I would like to be part of it. and understand how can recover the stem cells and find out what happened with them. Thank you.
Did you receive any additional information as to who to contact for further information on the status of our cord blood and or a class lawsuit?
Thank you, I am feeling completely lost.
Hi everyone. I also would like to join the class action lawsuit. I had no idea that there were any issues with CBBC until today, when I called to see if we can access our son’s cord blood for a family member in need. Of course, their phone numbers are not in service. I am sick to my stomach about this. If anyone has any information about how I can join the class action lawsuit, can you please pass it along. Thanks. My email is mb_guitar_gal@yahoo.ca.
Could we start our own Class action?
What is your email?
What is everyone’s email?
I would like to be added to the class action lawsuit. My child’s cord blood was banked there in May 2012.
This is very upsetting. I can’t believe I am just finding out about this now.
Please join the CBBC Client Forum Facebook group.
How unconscionable to bilk these parents, when all the time knowing that the cord blood they were storing could not be used in a time of need.
Absolutely disgusting!
What is your email?
Please join the CBBC Client Forum Facebook group.
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